A Mother’s Heartbreak: Influencer Hannah Campbell Mourns the Loss of 10-Month-Old Daughter to Rare Skin Disease EB
Influencer Hannah Campbell took to social media to share the devastating loss of her 10-month-old daughter, Elliana Rose, who passed away after battling epidermolysis bullosa (EB) — a rare and painful genetic skin condition.
“She passed peacefully, wrapped in love,” Campbell wrote in a heartfelt tribute. “I don’t know what to do with myself today. Thank you for loving her with us.”
Elliana’s Courageous Battle with Epidermolysis Bullosa (EB)
Throughout Elliana’s life, Campbell shared her daughter’s journey with EB, raising awareness of a condition often referred to as “butterfly skin” due to its extreme fragility. Babies with severe EB can develop painful blisters and open wounds from even the slightest touch or friction, affecting not only their skin but also internal areas such as the mouth and throat.
A Life Full of Love Despite Pain
Despite the challenges, the family cherished every joyful moment with Elliana. From celebrating her six-month milestone, to sibling laughter, karaoke nights, and even a visit to Disney World, Campbell documented the highs and lows of parenting a terminally ill child.
One recent post showed Elliana peacefully drinking a bottle, with Campbell writing, “Ellie’s body is slowing down, and we’re staying by her side, giving her all our love.”
Final Days: A Mother’s Love Through Every Breath
Just days before her passing, Campbell revealed that Elliana had stopped opening her eyes, eating, or crying, signaling that her small body was shutting down. Still, the family remained by her side, offering comfort and love through her final moments.
A Call to Action: Fight for a Cure
In her announcement, Campbell expressed her grief and anger over the suffering her daughter endured, calling for increased awareness and support for EB research:
“I’m heartbroken, and I’m angry. No child should have to endure what she did. EB stole her from us. Let’s fight for a cure so no other family has to feel this.”
